Wednesday, September 7, 2011

Broviac surgery - plus prayer requests

Hey guys,

I'd like to say first if you would please pray for my friend, Kelsey, she's not doing well right now and she is going to the PICU. I don't feel like explaining, but she is very sick right now and I would appreciate it so much if you would please pray for her health and for God to heal her 100%.

Another thing, I am going to be getting a new central line, a Broviac double lumen, on Monday. We are still waiting for Dr. Flores to call my local GI about what we're gonna do about my colon. Blegh.

I have this pounding headache and finally I convinced the GI to please let me have dilaudid for my head, not for my stomach cause oxycodone works for as long as I have this pounding headache they will use dilaudid. (1/2 mg)

Thanks guys, hopefully everything goes well with my health soon. And oh, yeah, I also found a homescooling curriculum that I love!! I'm really excited to start it cause they have an online chat community to talk to other kids that are doing the curriculum too. It's called Oak Meadow. I also get to do a professional, basically "shadowing" of the job that I want to pursue. I want to pursue respiratory therapy. I know I can handle it, it's exciting because the RT that i have here said that it was cool, but I have to get special permission, first. Hopefully they will let me wear my own scrubs! LOL. I've been scrub shopping online since last night and I've found some really cute scrubs. I might even go to Uniform City to look at all the pretty scrubs :) Can't wait to one day wear them, lol. :p

Please do keep praying for me. This infection is clearing up a bit which is good. I think the UTI went away too...they changed my antibiotic from vancomycin to ancef. The anesthesiologist wants to try me on IV methadone to see if we can tackle my stomach and pounding headache at the same time. She doesn't like oxycodone though I really get relief from it with pain.

Thank you guys<3

Sunday, September 4, 2011

Central line infection + stuffs

Hey guys....

So, I started getting sick Friday night with a really bad pounding headache and just didn't feel well. I thought I had a fever, but turns out I have never had a fever, but I went to the ER early Saturday morning around 6 am I got up cause I felt really bad. I got there about 6:30 and asked the doctor to draw blood cultures, so they did...I got dilaudid and some IV fluids and was feeling a heck of a lot better since the night I didn't sleep so well with that headache...then I got dilaudid every 4 hours which was really helping but it was not lasting very long, which sucked.

Got transferred to the children's hospital to be admitted for a variety of reasons...colon impaction, this headache that wouldn't go away, really really bad nausea, and a UTI. Then this morning the doctor came in and told me that my cultures came back positive; they grew out Gram positive cocci bacteria. So, i've been started on vancomycin and already got my second dose, haven't gotten horrible side effects but it's still early so I don't know what will happen later....I've also been started on Golytely to try to clean me out, then talk tuesday with the doctors in Boston and my local doctors about what we're gonna do about my colon because I obviously have not responded to the amitiza. :/

Other than that, i'm admitted and not feeling bright or bubbly as I wish to be...I feel really sick to my stomach but already received my 8 mg of zofran, but it hasn't helped. My pain is under control mostly, I already got the oxycodone and it works pretty well for me. It's just the really bad nausea and maybe I should vent my g-tube cause of it...probably going to right now..

Wanted to wish a very happy birthday to one of my very closest friends, and mi amor, Diego! Happy birthday, babe! <3 You make me so happy! :)

AND....If any of you are local, your welcome to come visit...however, if you're sick, please don't. if you want to know what hospital and room number, just ask me. Thanks, and keep praying, I really need it right now. <3