Arrived safely in Boston!

Hi there guys. I'm in the hospital right now, got here to Boston safely and let me tell you...I LOVE IT!!!! It's SO beautiful! I could TOTALLY see myself living here. There's Hispanics here, the culture is beautiful, the history is just amazing, everything is just sooo gorgeous. And the doctors? WOW. The doctors that I have seen so far are just great. They've been SO KIND to me and have told me that i'm not cuckoo, that surgery may be an option but we have to see the results of the tests tomorrow first so we can get this ball rolling!!! I'm basically in mito kingdom, there's SO MUCH information on mito here and that makes me so happy cause I know I'm in the right place, EVERYONE knows I'm in the right place!! All of this is amazing!! I'll be seeing Dr. Alex Flores (the nurses have been absolutely bragging about the guy. they just loveee him!) as well as my one nurse also telling me how much in love with Dr. Korson that I'm going to see as well. I actually saw Dr. Korson today walk out of the clinic!! I was like, wait a second! That person looks familiar! Duhhh. LOL. Anyways, I'm gonna go and I'll show you my picture of being in front of the Tufts Medical Center sign (there's a huge teddy bear statue! it's awesome!!) And oh yeah, the weather, I can actually breathe without using an inhaler. The weather is so amazing. I wish Florida was that nice. I can't wait to move out of icky sticky Florida. It's so dumb, I don't know why anyone would want to live there when they could live in beautiful Boston instead.. besides, Boston has the "T"! (aka, the subway ;P) it's COOL! Florida is NOT! Literally..! >_>

I'm gonna have the colonic manometry and antroduodenal manometry tomorrow morning while I'm sedated. We're all hoping this is it! This is the stuff that will tell us what's going on and lead us onto more of a road of answers. I'm gonna see Dr. Flores and Dr. Korson and they are going to work together to figure all this out! And hopefully give me a definite answer on the question if this is a mitochondrial disease. Of course, I don't want the disease, it's really not fun..but I just want an answer, so we can start treating with medication and try to get me better at all.

I can't have any pain medication, even though I walked quite a bit and my legs are hurting so bad, as well as my stomach. They're going to get me going on IV fluids as well as I think a bunch of miralax to clean me out for the procedure tomorrow cause I needa have a clean colon. :/

I'M GONNA SEE MY FRIEND TAYLOR TOMORROW TOO. Oh, and by the way, these Bostonian accents are AMAZING. "Pahk the cah", "hahvud yahd", "ahen't instead of aren't"...it's hilarious!! LOL.

Okay, guys, sorry...bye...I'll talk to you later! {:

Home!!!

Oof. I'm home. Home? HOME!!!!!!!!!!!!!! I can't believe that I'm home actually. I got so excited to see everyone...including my dog, Maya. :) SO happy to see her. We're like peanut butter and jelly when you put us together.

Unfortunately I was hungry when I got home so I immediately unconsciously went and started grabbing bland pieces of food. A cracker here, some rice, a few spoons of baby food...all of that led to a moaning, miserable Caroline. I have to learn to stop doing this to myself. It's REALLY hard to break free from a natural human action and emotional attachment...food. I have to get away from food. I really hope that I can either get some more self-control to stay away from food or have it somehow hidden from me in one way or another.

Sigh...being home is nice...food is not...gastroparesis is NOT nice....did I ever tell you that I hated you, GP? Well, I'm just reminding you. Ok, done venting...emotionally, not stomach-wise, I'm still trying to get the mistake out of my belly.

And I am off to see the TPN nurse here at my house for the first time! Tooodles...

I'M GOING HOME!

YAY! So, if you guys know me and have been in contact with me, you probably know that I've been in the hospital for the past month! Yeah, it's been a REALLY long time. I BEGGED my GI doctor (gastroenterologist - works with tummies!) to let me go home for two days because I'm being admitted to The Floating Hospital for Children in Boston on Monday. I'm going to be getting two huge tests done on Tuesday. I'm NOT excited at all for those tests but they are supposed to provide us with the most vital information!! Can't believe we're finally getting somewhere. We will also be seeing the mitochondrial disease specialist while in the hospital.

Wow, so yeah, I'm going HOME!!! The social worker JUST came in and told us that I'm all set and I just need to get my discharge papers completed. We needed to get home health figured out cause I need to go home on TPN (IV nutrition). I think I'm one of the happiest girls on the planet right now. I just can't wait to go home, see my doggie, see my own house and sleep in my own bed for the first time in a month. It definitely is a big deal for me as you can tell. :p

I'm sad I'm leaving my nurses though. :( You get really attached to everyone when you're in the hospital for a month...I'm sure I'll be back one day...but I really hope not anytime so soon. I'm gonna give everyone a hug and wanted to give them all thank you cards. And since all my nurses are not here today and my night nurses and stuff are also not here it sucks. Kind of bittersweet leaving like this!

Wow guys. I still can't believe I'm going HOME for two days. :')

Talk to you laters... :)

My first post! Yes!!

Hey guys! Wow, so this is my first post and I'm just surprised I actually got to work this thing! Haha, anyways..hey! This is my new blog, ya know, and stuff...place to write down everything that's going on, I would like to make every day posts to write about my every day craziness if I can.

I guess that's about it for my first-ever blogspot post! I'll chat with ya'll (or post to ya) later!